Archive for the 'Autism' Category

BBC NEWS | Education | ‘Double blow’ for autistic pupils

Marian April 16th, 2007

Children with autism who are from ethnic minorities face a double discrimination in education, campaigners say.

A National Autistic Society report on “the reality for families” suggests 62% of parents had no choice over the school their children would attend.

Parents were much less satisfied with their child’s academic and social progress than White British parents.

The government said meeting the needs of autistic children was “a priority”.

Parental perceptions are that their children lost out because of the sort of unwitting racism identified in a recent Department for Education and Skills report.

Joan Nelson, whose son is black and has autism, told the society she believed ethnicity had a significant impact on the level and type of education he was given.

“There appeared to be more of a belief that my child was bad as opposed to having special needs,” she said.

Black boys were penalised because their special needs meant they had difficulty accessing appropriate education, because they were Black, and because they were boys, she said.

“This hinders them in achieving what they should in today’s system.”

Training

Legally all children have the right to access a full education.

National Autistic Society officer Prithvi Perepa said: “All children must be able to access appropriate support and a range of educational provision in order that their individual needs are met.”

Among other recommendations, the report says schools must address bullying on the basis of race and disability explicitly in their anti-bullying procedures.

There should be cultural awareness training for staff - including speech therapists, who needed to be aware of how to work with children whose first language was not English.

The report is being launched on Monday at a conference in London which is part of the national Autistic Society’s ongoing campaign to pressurise councils and the government to improve the quality of education for autistic children.

Autistic spectrum disorders formed the largest single group in the Special Educational Needs and Disability Tribunal cases in 2005-06, its annual report reveals: 23% of the 3,410 appeals registered.

Awareness

A spokesman for the Department for Education and Skills said the government saw meeting the needs of all children with autistic spectrum disorders as a priority.

“We agree that all children with autism should have access to good quality provision and we will continue to work with the NAS and others in the autism field to achieve further improvements in provision,” he said.

Research the department had published last year found that children from ethnic minority groups were no more likely to be identified with autism than white British pupils.

The government wanted a range of provision for children with special educational needs.

He added: “We agree with the NAS that teachers need greater awareness and understanding of how best to meet these children’s needs and we are developing an autism pack for schools”.

BBC NEWS | Education | ‘Double blow’ for autistic pupils

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The Fright of Our Lives

Marian April 5th, 2007

Our son, Roy, has been sick since last Friday. You know, the stomach thing, diarrhea & vomiting. This combined with what we came to find was Strep on Saturday at the Emergency Room.

Last night, about midnight, I was getting Roy’s bed ready to move him off of the couch and into his bed when I heard a whimpering sound (I had no idea it could be Roy) but, I turn around on hearing him, and saw him clutching the wall, trying to steady himself. I reached him just in time to keep him from falling to the floor and hurting himself.

A sick child is a terrible thing, but when you have a child who is unable to communicate as a normal child might makes things much more difficult to grasp. He was terrified, not knowing what was happening to himself and loosing control of his body. We were terrified, as well. Dad was still at work because of our bad weather. Kerri was nearby and came as soon as I called for her.

We know that he is dehydrated and just can’t get him to eat or drink as he should. After he passed out and was feeling a bit better, we moved him to my bed, but he kept having little accidents, having to change his pants. Immodium just doesn’t seem to be stopping the diarrhea, (where most dehydration begins!) I put him on the scales. Saturday he weighed 106 lbs. at the hospital, last night he weighed 99 lbs. His weight loss is visible.

We concentrated last night on keeping him comfortable and trying to re-hydrate him. Kerri went to the store and brought in Pedialite, Gatorade, yogurt, bananas, etc…

We called the doctor this morning, she’s out today, but her nurse told us to stop the antibiotics (Augmentin) as it could be exacerbating the problem. Now, we wait to hear from them to see what our next step should be!

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Children and being sick…

Marian April 3rd, 2007

Friday began like any other Friday…. Get up get the kids off to school, all of the usual things. Little did I know that Roy would come home from school sick. It started with diarrhea at about 3pm. Then by 9pm it had graduated to vomiting. All through the night, he could never really get comfortable and the going from both ends continued. Finally, at 6:30, we became more concerned. He had the shakes and couldn’t stand up steadily. His eyes were sunken. He was dehydrated! We decided to call the doctor, but I wasn’t familiar with the Doctor on-call, so I thought it wasn’t too early to call my neighbour, Maria, who is also an M.D. (she didn’t answer!)

Then, we decided we needed to call his doctor at home! She’s a friend, and I am loathe to take advantage of that friendship. But, my son was sick and getting sicker by the minute, so I called her, and woke her…. ( I owe her lunch! :-) )

She told us to give him another suppository to stop his nausea, and if it didn’t stop it to take him to the Pediatric E.R. After 30 minutes we still had the diarrhea and nausea. We got ready to go to hospital. Roy was triaged and and taken to a room in the ER, where he was receiving treatment within a short time of our arrival. He was given IV fluids and eventually antibiotics as they also did a throat swab which indicated that he had Strep.

We left the ER by midday and were on our way home after a couple of intermediary stops, on of which was the pharmacy. Then it was home, where we tried to keep Roy as comfortable as possible, but his temp started going up. We decided to let it work for a while. Your body runs a fever for a reason, usually to cook out whatever bug is going after you!

We kept him home from school on Monday and Tuesday… and it looks like it may be Wednesday as well!

Wish us luck, until later,

Marian

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